The Real Superhero Film

I’m very excited about a project I’ve been working on for a few months now. Drumroll please…. I’m gonna be in a movie!

Okay, very weird tidbit about me – I was actually an extra in an “after school special” type movie back in high school. It starred some pretty famous people, but they probably would rather forget about it. After all, it was pretty cheesy.

However, this film is going to be truly amazing. I hope that anyone reading my lil blog here will follow our progress on social media and our website, which are all below.

The Real Superhero Film” is a feature-length documentary film that explores human stories of cancer survivors, as well as those who dedicate their lives and careers to helping cancer patients. They include esteemed physicians, nurses, nurse practitioners, and others.

The film will include a variety of intimate interviews, as well as casual and deep conversations about cancer from people of all ages, nationalities and walks of life. Naturally, the theme will be how these particular cancer survivors discovered their “superpowers”.

“Turn your pain into purpose”

A recurring theme in the film

Additionally, experts and medical professionals will discuss their work using their own “superpowers” to help enrich and save cancer patients’ lives.

****Super Bianca!****

Ultimately, the film will show that there are real superheroes all around us!

AND this all came about just by a chance meeting (I’d call it fate) during a physical therapy gym class and my very rude habit of eavesdropping on strangers.

There I was, riding along on the stationary bike one day, and all I can hear is this woman’s Eastern European accent. I looked at this woman, who I just knew was a cancer sista’ in full-on pink, talking with such intense passion about ALL she was doing! Well, she was: filming a movie here in the States and Bulgaria about cancer survivors; she is an extremely famous actress in Bulgaria and even hosted the Bulgarian version of “The Bachelor”; she was working with our hospital to get a PET Scan machine donated to Bulgaria; and, heading a team in a walk for breast cancer. This was a Bulgarian girl-boss and I immediately loved her!

Now, months later we’ve been workin’ it to get this film going, along with the production crew.

The director/co-creator is an award-winning, veteran filmmaker. He has created multiple documentaries, one in particular that aired on PBS. He has also made several short films that have won acclaim at top film festivals worldwide.

The executive producer has one heck of a resume/C.V. too, varying from risk management at Deloitte & Touche, to running her own consulting firm while also embracing her passion for art and design.

Our P.R. and marketing representative is out of the esteemed Dale Carnegie Agency.

We have over 20 participants in both the NYC Metro area and several in Bulgaria, including Bianca’s mother. Very little known fact: The entire country of Bulgaria has only 2, Yes 2, PET Scan machines. Hence, Bianca’s mother waited nearly 6 months for a PET Scan to show she was suffering from lung cancer! There are also few hospitals treating cancer patients and some must travel hours and hours from very remote villages just for treatment.

This is certainly a one-of-a-kind film and I’m honored to be a part of it.

Keep on Fighting!

The Real Superhero Film” Information:

Website: http://www.therealsuperherofilm.com

Instagram: @therealsuperherofilm

Twitter: @therealsuperhe1

Also, a HUGE thank you to NYU Langone Hospital and Mt. Sinai Hospital in New York City, who have provided an immense amount of support.

And I’m Out! Back Home, But Boy Does Reality Bite

It’s pretty surreal being back home after my 7th brain surgery, a full week in ICU and then 2 1/2 weeks in acute, inpatient rehabilitation. It was strangely very bittersweet leaving rehab, where I had a very set schedule, was taken care of so wonderfully and most importantly, able to remove myself from reality. As the fantastic ‘90s movie says, “Reality Bites”.

Room With A View

View from my window at inpatient rehabilitation.

When I was initially told I’d be in acute rehab for more than 2 weeks, I had a pure and utter meltdown. I couldn’t imagine being cooped-up for that long without my husband, my dog, my own bed, any semblance of privacy, and on and on. Ugly tears everywhere! So many, many ugly tears

Yet, now that I’m out and back home, I feel completely overwhelmed. Piles of mail sat on my desk. Things weren’t in their “proper place”. (I’m no neat-freak but I’m very Type A when it comes to where things are placed, kept, etc. I don’t know, blame my parents… 🤔🤷🏻‍♀️) I had to make countless follow-up appointments. I had to call the apartment management because yet again, some dirtbag threw their cigarette butt onto our terrace. My darling husband fell for one of the easiest scams ever, and the laptop only I use got hacked. I not-so kindly asked him if I could introduce him to a Nigerian Prince.

Then came the real kicker! I received a letter from a debt collection law firm (the lowest of the low on the attorney food chain) threatening to file suit against ME because the home healthcare agency I was forced to use back in 2018 never paid the company THEY contracted with to give me home PT & OT. ***If you are reading this and are a debt collection attorney, I make no apologies. As an attorney myself, I’d rather chase ambulances***

Well, that of course set up a whole chain of phone calls to my insurance, my family attorney and the law firm threatening suit. Then, I proceeded to look back on all my prior correspondence with the home healthcare agency and the company seeking to sue me because they hadn’t been paid. Finally, I wrote a lengthy email to all parties, copying my attorney, having to “make my case” in writing how I was in no way responsible for this money, threatening to sue the firm for harassment, and underscoring that the Court wouldn’t look too favorably upon some firm trying to make a recovering cancer survivor pay almost $5,000 because their client signed a contract with a less-than reputable home healthcare agency.

So, yeah, reality really f***in’ bites! While I imagined coming home would be so joyous and relaxing, it’s been anything but relaxing. Who leaves the hospital after nearly one month and actually wants to go back???

For anyone who has never seen this movie, you’re missing out!
The good old grungy 1990’s

I know things will settle down, and I’m being a bit dramatic. My fellow patients I met during my stay, who will remain hospitalized for some time would probably kick me for wishing I was back there. However, there’s something very distressing about returning home, no longer just one “call bell” away from help. I was so fortunate to have been in such a top-notch facility. There was always someone to talk to, who understood everything I was going through. Whether it was a social worker, a therapist, a nurse or fellow patient-someone was constantly there to support me. They were right there in the trenches with me, and there wasn’t ANYTHING those nurses, aides, or doctors hadn’t seen or heard before. It was a total judgment free zone.

So, now I’m out. I’m back to the real world. Maybe I just need to chill out on my couch with some friends, puff a lil of my medicinal med not permitted in the hospital, go grab snacks at a gas station and start dancing to some cheesy music. (If you’ve seen the movie, you’ll get the reference)

They Tried To Make Me Go To Rehab… And I Go, Go, Go

After a week in ICU following my 7th brain surgery, I was sent to inpatient acute rehab. Since they seriously work me here, this won’t be a long, deeply reflective post. I’m definitely “on the go” constantly here.

Nevertheless, I did think it was important to post about my experience thus far.

This is actually my 2nd stint in an acute rehab facility. In fact, back in 2017 when I had to be transferred to an inpatient rehabilitation facility my doctors tried to get me into this particular rehab. Unfortunately, there were no beds available and thus, I wound up in a very good facility. However, it’s nothing like this experience!

I’d say I’m currently in the “creme de la creme” of neurological rehab facilities. It’s pretty rare to have absolutely NO complaints about a healthcare facility these days. Yet, I don’t have a single issue and can only sing the praises of every single staff member. From the doctors to the men who clean the floors, everyone is truly amazing.

I’ve been here for two weeks now, and have another half week ahead of me. Okay. I am getting a bit tired of the same food options, but if that’s my only gripe-that’s pretty darn fantastic!

Before this last surgery, I could barely walk. I was in constant fear of falling, and for good reason. I was basically falling every day. I had no balance. I slept until noon, on good days! My body was so fatigued it took every once of energy to simply get out of bed. Then, I’d merely move to my couch. Let’s just say I blew through countless Netflix movies and series. Around 8:00 p.m. I’d be asking my husband to bring me back into the bedroom. I’d take a quick shower or bath, and I was done.

My day here includes:

•Wake up at 8:00 a.m. & eat breakfast

•Start physical therapy around 10 p.m. and work on balance exercises, walking with and without my cane (Yes!), using the treadmill, walking along the unit, etc.

•Speech/Cognitive therapy immediately afterward

•Lunch at noon

•Then, occupational therapy where I work out my weakened left arm through stretches and a state-of-the-art robot that measures my range of motion. It’s pretty cool, I have to say. We also work on “Activities of Daily Living” (ADLs) like how to step into the shower safely, cooking a meal or doing laundry. Now, I’m doing squats to pick things up and not dropping everything I put in my hand.

•Once my standard therapies are over, I can join a gym class, go to art therapy, and/or horticultural therapy (potting an array of beautiful plants and learning how to care for them).

I can achieve all of this before 4:00 p.m.! Prior to this surgery, I was barely able to function never mind participating in so many amazing activities before the sun goes down.

I’d never imagine eating dinner at 4:45, but it’s the early early bird special here!

By the time I finish dinner, it’s time to shower-up and start getting ready for bed. Who knows? Maybe this night owl just may learn to become an early bird… Realistically though, probably not.

It’s amazing what these dedicated professionals can do for people like me with such extreme neurologic deficits. It’s even more fascinating what they do for people much worse-off than me.

The brain is truly an incredible thing.